As more and more people are finding and reading this blog (thanks!) it seems appropriate to summarise briefly S's current situation. When I started this blog we were in a desperate state and receiving very little support, except that family and friends rallied round.
We're in a much better state now as, against all the odds, S has made something of a recovery from whatever was causing her dramatic decline in the autumn. This post sums up the improvements: http://adventureswithdementia.blogspot.co.uk/2012/04/how-s-has-improved.html
whilst possible reasons for this improvement are discussed here: http://adventureswithdementia.blogspot.co.uk/2012/04/possible-explanations-for-ss.html
One of the scary things about this condition is that no-one knows what's round the corner so we (and I do mean we) are as determined as ever to carry on enjoying life as much as possible. We're planning a motorhome journey to Venice in July to celebrate my brother's 70th birthday. Wish us luck!